Thank you all so much for the outpouring of love and support. It has been a roller-coaster ride for the past day and a half. Our plan is to update this every so often because we have limited cell coverage here in the hospital and we have had little time to go outside and make calls and send texts. Also give us something to do while we anxiously wait around.
Vittoria was born with Marfan Syndrome. It is a connective tissue disorder tha causes a lot of problems for those affected with it. Here is a link to the National Marfan Foundation for those that would like to know a little more about it. www.marfan.org
Our little angel exhibits most of the symptoms of Marfan and has been through a lot in her young life. She has had heart surgery as a toddler and has had the VEPTR (rods in her back) for many years.
Yesterday's heart surgery was to be her 16th surgery and we are trying to decide if we count this as just the 16th or the 16th, 17th and 18th. Everything went well in the surgery until it was time to finish up. That is when things turned a little scary. She basically crashed and they had to go back in and change a few things. The 7 hour surgery turned into around 12.
Things were somewhat stable but started to slowly deteriorate through the night. She had a Heart Cath this morning and found that the a Coronary Artery was partially blocked and they put a stint in and got the flow going. Luckily the muscle was not dead. Once that was fixed a new leak surfaced. She then was opened up again to find that.
Now she is back in the ICU on an ECMO (Extracorporeal Membrane Oxygenation - like a heart/lung machine). We will let her rest and recover for a few days and let the machine do all of the work. The hope is that the heart will heal and recover. It is the only option left.
Please continue to pray for our little princess.