We have met with the transplant team members again today. They look at everything about her and us. They are doing all kinds of tests looking at all of her functions. We will know this afternoon if she will be put on the list or not. It has been quite the process. It will be quite a future. The post transplant life is just a magnification of what we have been living since she was born. Lots of doctor visits and a steady regime of medicines. The first year will be intense but gradually returning to normal.
Vittoria was pretty awake today and we were able to go in an sit with her. She indicated that she was scared and shed a tear but was comforted by our encouragement. Thank heavens for the Versed that will make her forget... (can we get some too???) the pain and what she is going through. She tried to pull out one of her tubes.... now that is the girl we know. She held my hand with her right hand and her mom's with her left hand. She is such a fighter! We love her so much!
We will see where things go today. So many external things to consider. Lots of forms and applications. So much to be done.