Our little angel is still fighting. We have had an uneventful night... just how we like it. The nurses are working so hard. Nurse Torrey had blisters on her hands from stripping Vittoria's drain tubes. It is amazing the hard work and diligence these awesome professionals have. Thank you!! We want to also thank our families and friends that have been so close. There is something so powerful about a nice firm hug. I can't wait to be able to give one to my little princess.
So many of you are following this blog. I was never big on blogs but it has been such a great way to let you all know what is happening, but a way for us to collect our thoughts and .... sorry gotta go!
Okay, here is the latest. She is being evaluated for a heart transplant. This is way unfamiliar territory. But it does bring hope! We never know where life takes us or what Gods plan may be but we will keep fighting. I have mixed feelings about transplants. Our joy would be another's nightmare. We have been living a nightmare and I wouldn't wish it on my worst enemy. I then think back to my dear cousin Meridith who passed away after an auto accident. Many beautiful things happened as a result. The family was even in touch with her heart's recipient. It was a positive experience. This afternoon we will get more information. We will see what the options are. In the mean time it would mean a change to another type of pump that would eventually lead to her breathing on her own and even to walk around.... carrying her battery of course. We will know later. I will keep you posted. Keep the faith and keep on praying!
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Just want you to know that we are continuing to pray for Vittoria and your family! Keep fighting! We are thinking of you guys! Love Ya!
ReplyDeleteWe love that you are keeping us updated with this blog. I find myself checking it several times throughout the day. I'm so glad she is stubborn and is a fighter. What a great mix of you two she is.
ReplyDeleteI think that sounds like great news, a heart transplant might just be the answer! I was wondering if she sees Dr. Yetman, we have been extremely impressed with her. It is so amazing to think of all of the many people requesting miracles on her behalf, that has to bring such comfort to you all! We will keep praying for your little Vittoria, my girls think she is such a doll and keep asking me throughout the day for an update. You know you have to be willing to do anything for a former prom date! Take care and hold strong to your faith.
ReplyDeleteI love Vittoria's determination to fight this fight! She is amazing! Must be great parents!
ReplyDeleteI guess it's good news to have other options, huh? You guys have been in my thoughts all day. Still praying for Vittoria all the time! Thanks for the updates on this blog. :)
ReplyDeleteSo sorry to hear about Vittoria.....we don't know why we have to go thru these trials (yes I quess we do) You guys are very special & she is a strong little girl!!!!
ReplyDeleteLove...Bruce & Shaunna Haslam
Hi, my name is Aly, I am Kirk Savage's sister. My little girl Annie received a very sweet email from her cousin Meggie today in regards to Vittoria and all that your family is going through. I just wanted to share with you my little 8 year olds concern for your precious little girl. She poured her heart out this evening in prayer to our Father in Heaven for Vittoria's well being. As her room filled with the spirit I was so touched. She is planning to fast this Sunday for Vittoria. Your family is very much in our thoughts and prayers. May God bless you with the comfort and strength that you need to get through this difficult time. You have a very beautiful family. From the posts that I have read it is very evident that you are all strong and fighting! We hope and pray that you will be touched by a miracle.
ReplyDeleteLove,
Aly