We had a quiet stable day. Not a whole lot going, which is good. I spent the day taking care of the financial side of things. It is amazing how many programs are out there for people. Now it is a matter of wading through it all to see what programs we can qualify for. I feel like I am trying to apply for scholarships for school.
Vittoria behaved herself today after the escape attempt at 5am. I guess she had one foot out and was trying to pull off the sheets and run away. They had to restrain her and sedate her. We like fight.
We were able to talk with her tonight. She nodded, shrugged shoulders and tried to push the breathing tube out with her tongue. We talked about the Taylor Swift picture and her song and that was the happiest I have seen her for quite a while. I guess you take the little things for granted in life.
We are still a go for the transplant. What a mixed range of emotions. We pray for a heart and pray that if it is God's will that we should get it, that the family who experiences such a loss may be comforted in knowing that another life was saved by that precious gift. We have experienced those feelings first hand as we have ran out of options and had no hope that our little girl would make it. We basically said our goodbyes twice now and then a little miracle happened and she was granted a little more time. It is obviously not her time to go... We pray for the ultimate gift now and pray and pray and pray. It is our only option at this point. We are on borrowed time. The machines can only sustain her for so long. Our princess is waiting for the greatest of miracles... LIFE. Please pray for her....